[personal profile] rootofnewt

i was craving an omelet, so boy made one for me. i think they're going to have to be crossed off the list--they're making me sick these days.

i didn't fall asleep until nearly 6am. i woke up at 12:30, used the bathroom, felt horribly sore/nauseated/icky and went back to bed for another couple hours.

i'm so sore. it's hard to believe just how much worse my base pain level can get sometimes.

and what's up with the joint pain? that is not part of fibro. *sigh* i'm stiff and hobbly when i've been out in the cold for too long or when i first wake up. this is weird. lots of naproxen can help with it, but i hate taking it that often. besides--i'm already on nexium, i don't need to antagonize my stomach any more.

i haven't heard from the sleep clinic (the behavioral management place)--they were supposed to call me back this past week. I meant to call them on friday, since they were supposed to call me Tuesday. I'll do that tomorrow, if I remember. i'm going to ask them if they work with the sleep lab, if not, i'm going to ask them what more they can offer me that i don't already do or have tried. since i've done cbt, biofeedback, etc, i don't see the point in paying expensive co-pays for treatment i know is not sufficient. i also need to call the insurance company and see if they *cover* sleep labs.

i'm tempted to call my doctor and point out that if he's not able to help me sleep, he needs to address the *pain* i'm now in, preventing me from sleeping or functioning at even a 30% level of normalcy.

Re: joints and email

Date: 2004-02-01 11:28 pm (UTC)
From: [identity profile] dahliablue.livejournal.com
I've been having the same problem with joint pain and swelling. My doc waved it off as fibro, but something's gnawing me that it isn't fibro. Seven years with fibro and I didn't have this problem until the past year. I also have stiffness to the point where I have to manually pop my joints back into place. I don't know what this is. I'm going back to the doc and if he says "Just fibro" again, I'm going to see someone else for a second opinion. I want to know why I'm degenerating and if it's something serious, I don't want it overlooked because of the fibro.

Anyway, I hope you're able to find something that helps, sweetie. If you do, would you mind passing it on to me? Not being able to hold a pen or play the piano or guitar is crushing my spirit.

Re: joints and email

Date: 2004-02-02 09:10 am (UTC)
From: [identity profile] cutopia.livejournal.com
I have celiac disease (thought by many to be another fine example of an autoimmune disease) and my main symptom of gluten exposure is bone and joint pain. At one point, when I was a bad little kid sneaking donuts every day, it got so bad my knees were locking up.

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