i'd like to hear smeagol say "truly scrumptious"

[rootofnewt]

living with fibro and without pain meds isn't exactly desirable.

why do i do this?

i don't have much of a choice right now.

my doctor doesn't seem interested in dealing with the fibro. i'm not keen on dealing with it and finding another doctor because, to be honest, every med which has been prescribed for my fibro has backfired in a major way. why get my hopes up?

it's a lot easier to stay up til i'm so exhausted i can't help but sleep. that's why i have chitty chitty bang bang on DVD.

Comments

[phir.livejournal.com]

i did some research on google, & i found it kind of hard to understand. fibro is a condition where you body experiences pain, & tthere is no source of the pain? no cure?

if you have a second, i'm curious to know. & i hope you feel better soon, dear.

[krasota.livejournal.com]

fibromyalgia (http://www.sover.net/~devstar/phdefine.htm) is a chronic pain disorder characterized by near constant pain, "trigger points" where the pain is worst (or are present when pressed), flu-like lethargy and achiness, cognitive problems, etc. Basically, it's like living with the flu all the time--pain, fatigue, sleep problems, brain fog.

There are sleep disorder properties and there's some evidence it's a neurological disorder, rather than rheumatological.

The most common treatments involve SSRIs (to treat the neurotransmitter dysfunction) and, sometimes, pain meds. Unfortunately, SSRIs cause severe side effects for me and lots of docs are leery of prescribing pain meds. Regardless, most of the typical pain meds cause nasty side effects for me.

A good exercise program can help quite a bit with fibro, but I also have CFIDS (http://www.co-cure.org/physical.htm) (a name for CFS), which means that exercise can make me much worse. Right now, my CFIDS is on the upswing, so I could exercise *very carefully* if I didn't have foot issues (completely different--nerve and mechanical-problem pain). Right now, I can't do weight-bearing exercise very easily. Just walking is excruciating.

Quick, run away! ;)