i'd like to hear smeagol say "truly scrumptious"

[rootofnewt]

living with fibro and without pain meds isn't exactly desirable.

why do i do this?

i don't have much of a choice right now.

my doctor doesn't seem interested in dealing with the fibro. i'm not keen on dealing with it and finding another doctor because, to be honest, every med which has been prescribed for my fibro has backfired in a major way. why get my hopes up?

it's a lot easier to stay up til i'm so exhausted i can't help but sleep. that's why i have chitty chitty bang bang on DVD.

Comments

[dahliablue.livejournal.com]

*gentle, empathetic hugs*
.

[forest.livejournal.com]

*hugs*
that sounds way too familiar, I thinks it's because most of them haven't got a clue how to treat fibro.

[quasigeostrophy.livejournal.com]

*hugs*

[red-frog.livejournal.com]

Smeagol will be glad to oblige. :) ("Mmm... bourbon Rooibos, my precious.")

Sorry you're feeling so lousy.

[sheilamarie.livejournal.com]

I send a text message but in case you didn't get it, send me an e-mail to ssurla at trane dot com so that I can e-mail you that article I mentioned last week :)

[lcohen]

i hope that things ease up on you soon.

*hug*

*gentle hugs*

[allicat40.livejournal.com]

Hugs and snugs - you're always in my thoughts. Guess i'll be going on friday for my xray.. i'll be more than glad to get that out of the way. Hope you can get some rest.. wish i was there to make you soup and tea and give snugs.

[laverick.livejournal.com]

i don't know how you do it, but i admire the positive attitude i hear so much from you. (((hugs))) hope you find some needed relief soon.

[phir.livejournal.com]

i did some research on google, & i found it kind of hard to understand. fibro is a condition where you body experiences pain, & tthere is no source of the pain? no cure?

if you have a second, i'm curious to know. & i hope you feel better soon, dear.

[krasota.livejournal.com]

fibromyalgia (http://www.sover.net/~devstar/phdefine.htm) is a chronic pain disorder characterized by near constant pain, "trigger points" where the pain is worst (or are present when pressed), flu-like lethargy and achiness, cognitive problems, etc. Basically, it's like living with the flu all the time--pain, fatigue, sleep problems, brain fog.

There are sleep disorder properties and there's some evidence it's a neurological disorder, rather than rheumatological.

The most common treatments involve SSRIs (to treat the neurotransmitter dysfunction) and, sometimes, pain meds. Unfortunately, SSRIs cause severe side effects for me and lots of docs are leery of prescribing pain meds. Regardless, most of the typical pain meds cause nasty side effects for me.

A good exercise program can help quite a bit with fibro, but I also have CFIDS (http://www.co-cure.org/physical.htm) (a name for CFS), which means that exercise can make me much worse. Right now, my CFIDS is on the upswing, so I could exercise *very carefully* if I didn't have foot issues (completely different--nerve and mechanical-problem pain). Right now, I can't do weight-bearing exercise very easily. Just walking is excruciating.

Quick, run away! ;)