krasota (![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
rootofnewt) wrote2001-09-06 08:38 pm
rootofnewt) wrote2001-09-06 08:38 pm
blah
Normal. Yes, my EMG and NCV were normal, except for a weird reading on the outside of my right knee... a nerve problem that I probably don't even notice, since I don't sit cross-legged or in the lotus position. So, all the docs were positive I had peripheral neuropathy, but I do *not*. Nor do I apparently have CTS, despite being symptomatic (severely so, at some points) since age 16. I was diagnosed with *that*,too, but the docs didn't want to subject me to the EMG unless I needed surgery.
I don't know *why*. The EMG wasn't that bad. I've definitely had worse. The NCV wasn't horrid, either. I've inflicted worse jolts on myself. I'd rate the pain about a 1-2 on a scale of 1-10, with the pain in my feet today being around a 6 (difficult to walk without wincing). A month ago, the foot pain was around 10, with the fibro pain at 10 as well. That's what happens when I can't get good sleep. I was curled up in the fetal position, rocking and crying for a good week or two there.
Now they want me on oral B12 for a month. At that point, the doc will check my levels. If they haven't improved, I get to take B12 injections. If the levels haven't gone up after that, they get to test for pernicious anemia. No matter what, if my symptoms haven't improved in 3 months, the neuro wants to start testing for a bunch of CNS things.
gah.
How can I *look* so healthy, inside and out, yet be in so much pain?
I hope the B12 works, but I'm not holding my breath. These problems started back when I was a meat eater. I had plenty of B12 in my diet back then. And I have plenty in my diet now, being a voracious cheese/yogurt monster. My body hates lactose, but I gobble it up. I have a feeling my body has personal issues with B12.
Oh, well. At least I don't have nerve damage to worry about. Just unexplainable pain, burning, tingling, and numbness.
I don't know *why*. The EMG wasn't that bad. I've definitely had worse. The NCV wasn't horrid, either. I've inflicted worse jolts on myself. I'd rate the pain about a 1-2 on a scale of 1-10, with the pain in my feet today being around a 6 (difficult to walk without wincing). A month ago, the foot pain was around 10, with the fibro pain at 10 as well. That's what happens when I can't get good sleep. I was curled up in the fetal position, rocking and crying for a good week or two there.
Now they want me on oral B12 for a month. At that point, the doc will check my levels. If they haven't improved, I get to take B12 injections. If the levels haven't gone up after that, they get to test for pernicious anemia. No matter what, if my symptoms haven't improved in 3 months, the neuro wants to start testing for a bunch of CNS things.
gah.
How can I *look* so healthy, inside and out, yet be in so much pain?
I hope the B12 works, but I'm not holding my breath. These problems started back when I was a meat eater. I had plenty of B12 in my diet back then. And I have plenty in my diet now, being a voracious cheese/yogurt monster. My body hates lactose, but I gobble it up. I have a feeling my body has personal issues with B12.
Oh, well. At least I don't have nerve damage to worry about. Just unexplainable pain, burning, tingling, and numbness.
oh how true!
going on with everything coming up negative and people saying "well, you look all right" is just so frustrating. in some ways i'm quite glad i haven't got enormous blue spots - but in others it would be rather useful...